Assessing the Efficacy of Visual Aids to Enhance Patient-Physician Communication

Participants: Pediatric Surgery Patients diagnosed with Pectus Excavatum (12-18 y/o) & their Caregiver(s) / Parent / Guardian

Data Collection Style: 30-45 minute interview via HIPAA-compliant video-conferencing platform

Our Pectus Excavatum Research team aims to evaluate potential disparities and gaps in patient education regarding Pectus Excavatum in order to develop a visual tool to enhance patient understanding, knowledge, and confidence. By researching and developing this tool, we may begin to understand the nuances in pediatric patient education and how to create better, more effective educational tools. Using this data, a visual tool will be created that reflects the comments and meets the needs of the pediatric PE patient population. We encourage our patients and their caregivers to openly share their experiences with PE education and expectations surrounding treatment.

Interviews are conducted with a member of our research team. All interviews are recorded for transcription purposes and will be de-identified for privacy purposes. Both the patient and caregiver must be present for the interview of under the age of 18. Interviews are scheduled virtually at the convenience of both the patient and the caregiver.

If you are interested in participating in our study, please email [email protected] for more information! We look forward to helping you make an impact in our Pectus community.

 

 

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