Natural History Database and Biosample Repository
Overview
This is a longitudinal observational study that collects biosamples and clinical data from individuals with Tuberous Sclerosis Complex (TSC) to better understand the disease’s natural progression and to support the development of new treatments for affected areas.
Population of the study: Individuals that have a confirmed diagnosis of TSC
Intervention: There is no intervention, this is a longitudinal observational study that comprises gathering data through patient-reported outcomes, clinical assessments, and biological samples to understand the disease’s natural progression.
Outcome: Understand the natural progression of the disease and possibly develop better treatments for patients with TSC
Trial Information
Target Enrollment: There is no enrollment for this study.
Funder: TSC Alliance
Duration of Study: This is a longitudinal study with an indefinite timeline, allowing for repeat measurements of the same subjects over an extended period.
Study Principal Investigator
The Institute for Clinical Research and Learning Health Care
McGovern Medical School at UTHealth Houston
6431 Fannin, MSB 3.149
Houston, TX 77030
(p): 713-500-6350
Links
TSC Biosample Repository & Natural History Database