Tuberous Sclerosis
The UT Tuberous Sclerosis Center of Excellence encompasses comprehensive care and research for pediatric and adult patients with Tuberous sclerosis complex.
Tuberous sclerosis complex (TSC) occurs in 1 in 6,000 individuals. TSC is a generic disorder characterized by abnormal skin pigmentations (hypopigmented macules, shagreen patches) and tumor formation in multiple organ systems (brain, heart, lungs, kidney, eyes). At the UT Tuberous Sclerosis Center, we consult with the patient and family, the primary care physician or pediatrician, and with specialists familiar with the particular complications of Tuberous Sclerosis Complex, to provide comprehensive care for our patients.
The UT Tuberous Sclerosis Center of Excellence has been designated by the national Tuberous Sclerosis Alliance and brings together all the sub-specialists that are needed to help treat the manifestations of Tuberous Sclerosis. Our advanced diagnostic tools also help families and the medical-team make the best decision for children.
Team
Co-Director & Geneticist – Hope Northrup, MD
Co-Director & Neurologist – Mary Kay Koenig, MD
Nephrologist – Joshua Samuels, MD, MPH
Endocrinologist – David F. Rodriguez, MD
Genetic Counselor – Kate Mowrey, MS, CGC
Nurse Coordinator – Claire Sartwell, BSN, RN
Medical Assistant –
Research Coordinator – Elida Salazar
Clinic Times
1st and 4th Monday and 3rd Tuesday of every month between 8:00 – 11:30 am at the UT Professional Building in the Texas Medical Center
Forms
Please review and complete the UT TSC Clinic Intake Form and return to the TSC team prior to scheduling an appointment.
Medical Release form is used to authorize the release of medical records from previous health professionals to our team.
Information
For more information or scheduling an appointment please call 713.500.7149 or send us an email .
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