Observational Study: Loneliness & Social Engagement
A Study of Loneliness, Social Connections, and Disease Outcomes in Movement Disorders
| What is this study? | This study looks at how loneliness and social engagement relate to symptoms and disease progression in people with movement disorders, including Huntington’s disease. Loneliness and limited social connections may affect mood, thinking, and physical health. The goal of this study is to understand whether people who feel more isolated or less socially connected experience worse symptoms or faster progression over time. No treatments or medications are assigned as part of the study. |
| Who can participate? | • Adults 18 years and older • Diagnosed with a movement disorder (including Huntington’s disease) • Able to complete questionnaires in English |
| What is required? | Participants will complete one study visit per year for up to three years. At each visit, they will answer questionnaires about loneliness, social connections, and mood, and complete routine motor and cognitive assessments during their clinic visit. No changes to medical care are required. |
| How long does it take? | One visit per year, each visit takes about 1 hour |
| Contact | Karina Lucia Moreira Sassi at [email protected] or (832) 962 3486 |